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THE VOICE OF BREAST CANCER IN MEDICINE AND BIOETHICS Philosophy and Medicine VOLUME 88 Founding Co-Editor Stuart F. Spicker Editor H. Tristram Engelhardt, Jr., Department of Philosophy, Rice University, and Baylor College of Medicine, Houston, Texas Assistant Editor Lisa Rasmussen, University of North Carolina, Charlotte, North Carolina Associate Editor Kevin Wm. Wildes, S.J., Department of Philosophy and Kennedy Institute of Ethics, Georgetown University, Washington, D.C. Editorial Board George J. Agich, Department of Bioethics, The Cleveland Clinic Foundation, Cleveland, Ohio Nicholas Capaldi, Department of Philosophy, University of Tulsa, Tulsa, Oklahoma Edmund Erde, University of Medicine and Dentistry of New Jersey, Stratford, New Jersey Eric T. Juengst, Center for Biomedical Ethics, Case Western Reserve University, Cleveland, Ohio Christopher Tollefsen, Department of Philosophy, University of South Carolina, Columbia, South Carolina Becky White, Department of Philosophy, California State University, Chico, California The titles published in this series are listed at the end of this volume THE VOICE OF BREAST CANCER IN MEDICINE AND BIOETHICS Edited by MARY C. RAWLINSON Stony Brook University, Stony Brook, NY, U.S.A. and SHANNON LUNDEEN University of Pennsylvania, Philadelphia, PA, U.S.A. A C.I.P. Catalogue record for this book is available from the Library of Congress. ISBN-10 ISBN-13 ISBN-10 ISBN-13 1-4020-4508-5 (HB) 978-1-4020-4508-0 (HB) 1-4020-4477-1 (e-book) 978-1-4020-4477-9 (e-book) Published by Springer, P.O. Box 17, 3300 AA Dordrecht, The Netherlands. www.springer.com Printed on acid-free paper All Rights Reserved © 2006 Springer No part of this work may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, microfilming, recording or otherwise, without written permission from the Publisher, with the exception of any material supplied specifically for the purpose of being entered and executed on a computer system, for exclusive use by the purchaser of the work. Printed in the Netherlands. TABLE OF CONTENTS ACKNOWLEDGEMENTS vii INTRODUCTION Negotiating Personal and Political Settlements with Breast Cancer: Women Finding Their Own Ways to Live with Human Contingency Rosemarie Tong . . . . . . . . . . . . . . . ix DISCOURSES OF BREAST CANCER: WHO SPEAKS FOR BREAST CANCER? 1. Personalizing the Political: Negotiating the Feminist, Medical, Scientific, and Commercial Discourses Surrounding Breast Cancer Susan Sherwin . . . . . . . . . . . . . . . 3 2. Power, Gender, and Pizzazz: The Early Years of Breast Cancer Activism Barron Lerner . . . . . . . . . . . . . . . 21 3. Breast Cancer: Dueling Discourses and the Persistence of an Outmoded Paradigm Gwynne Gertz . . . . . . . . . . . . . . . 31 4. Doing Things with Ideas and Affects in the Illness Narratives Of Susan Sontag and Eve Kosofsky Sedgwick Lisa Diedrich . . . . . . . . . . . . . . . 53 . . 71 6. Breast Cancer: The Maternal Body Reflected in a Three-way Mirror Debra Gold . . . . . . . . . . . . . . . . 89 NARRATIVES OF BREAST CANCER: LIVING WITH DISEASE 5. The Breast Cancer Diaries Anita Ho . . . . . . . . . . . . . . . vi TABLE OF CONTENTS 7. Learn to Love What’s Left : Poems on Breast Cancer Leatha Kendrick . . . . . . . . . . . .